Amplifying the Patient Voice
throughout the healthcare, regulatory and public policy arenas and across the research continuum!
For the past 47 years, the Lupus and Allied Diseases Association, Inc., has been providing education, support, and outreach services for people impacted by lupus and allied diseases while wielding the patient voice as a catalyst to advance awareness, advocacy and research initiatives.
For the Fiscal Year ending on September 30, 2024 our organization's administrative costs were less than 1.0% leaving more than 99.0% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus and/or an allied disease or love someone with lupus that you will use this website and our programs as tools to become empowered to take control and learn to manage the disease to live life to the fullest. We know firsthand that lupus and allied diseases do not just affect an individual, but also impact family, friends and others close to you.
Know that we are here for you and your loved ones as we all continue on our lupus journeys.
What's New
LADA Attend ACR Convergence 25 Conference
LADA host the Lupus Community Booth #2121 at the American College of Rheumatology's ACR Convergence 2025 held October 24-29, 2025 at McCormick Place Convention Center in Chicago. LADA sponsored 8 people with lupus and care partners to attend as well as 1 patient representative to participate in the Patient Perspectives Program as a session speaker.
A Wonderful Day at The 25th Annual Lupus Charity Golf Classic
LADA's 25th Annual Lupus Charity Classic was held on Thursday, August 14, 20254 at the beautiful Shenendoah Golf Course at Turning Stone Resort Casino in Verona, NY. The event was a great success raising $205,000 in gross proceeds to fund our advocacy, awareness, education and research programs. Click here to learn more
A Generous Year of Supporting Lupus Research
LADA is thrilled to share that we continued to support quality lupus research by supporting 5 research organizations this year, presenting checks at our Golf Classic Dinner. We are honored to have supported an incredible $539,724 in research donations this year, now funding $3,454,952.70 overall to lupus research since 1990. Click here to learn more.
LADA Attends BIO Convention
The LADA Team attended the BIO International Convention in Boston June 16-19, 2025. The conference allowed us to interact with other global stakeholders in the Life Sciences arena while learning of innovative advances. President & CEO Kathleen Arntsen spoke during the new Storytelling Session stressing the importance of patient engagement in R & D.
LADA Attends LUPUS2025
The LADA Team traveled to attend LUPUS2025 in Toronto with eleven patient and care partner representatives on May 20-25, 2025. The international conference provided us with opportunities to hear from international experts on lupus research while networking with the global lupus community. We thank the meeting organizers for hosting such an informative meeting.
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LADA Lupus Awareness Month
LADA promoted May as Lupus Awareness Month with its 31 Days of Lupus Facts, 17th Annual New York State Capitol Legislative Awareness Event and celebrated World Lupus Day (WLD) on May 10th. We were also excited to co-sponsor our Second Annual Lupus Walk with the Masonic Medical Research Institute (MMRI) on May 17th at their Campus in Utica, NY. Click here to learn more
Lupus Awareness In NY
LADA traveled to Albany along with the other Lupus Agencies of New York state groups on May 7, 2025 to be recognized in the Assembly and Senate Chambers of the state capitol. We thank Assemblywoman Marianne Buttenschon and Senator Joseph Griffo for continuing to sponsor the resolutions recognizing May as Lupus Awareness Month each year.
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World Lupus Day Celebrated with Hats on 4 Lupus
LADA celebrated May 10th as World Lupus Day (WLD) by promoting our Annual WLD Tea and Hats on 4 Lupus While You Brew Up Your Inner Warrior event. It's not too late to Pour yourself a cup of tea or beverage of your choice, put on a hat and snap a photo and send to us for our gallery.
LADA Attended ACR Convergence 24 Conference
LADA hosted the Lupus Community Booth #2200 at the American College of Rheumatology's ACR Convergence 24 held November 14-19, 2024 at the Washington DC Convention Center. LADA sponsored 14 people with lupus and care partners to attend as well as 3 patient advocates to participate in the Patient Perspectives Program and 1 in an ARP Session. To learn more Click Here
LADA partners with NKF, LFA and LRA on LN PFDD Meeting
The National Kidney Foundation (NKF) hosted a Lupus Nephritis (LN) Patient Focused Drug Development (PFDD) Meeting on October 11, 2024 in Hyattsville, MD. The meeting was held both in person and virtually. The event was a success due to the incredible patient panelists who shared their lupus nephritis journeys with passion, candor and emotion. We thank all who participated. Click here to learn more.
